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Autism Spectrum Disorders in the European Union. ASDEU Project

Understanding about autism will get a boost as universities, charities and expert institutions from 14 European countries come together in a major new programme.

A consortium of 20 institutions from different countries of the European Union, including the HTA Unit of Health Service of Canary Islands (SESCS) and the BioAvance, are working together in the ASDEU Project (Autism Spectrum Disorders in Europe), led by Manuel Posada, head of the Research Institute for Rare Diseases (IIER).

The main objective of this project of to estimate the prevalence of autism spectrum disorders (ASD) in 12 European countries. Other objectives are: to estimate the social and economic costs of autism, to contribute to the improvement of early diagnosis and treatment of children and to improve knowledge about the care currently provided to adults with ASD. Three surveys are currently under way in relation with these objectives,

The social and economic cost of ASD will be estimated from a survey addressed to people with ASD and their caregivers. This activity is jointly led by Pedro Serrano (head of SESCS and leader of Group 4 of REDISSEC) and Martin Knapp (London School of Economics and Political Science).

The team of Ricardo Canal, from the University of Salamanca, has developed a survey for family members and professionals to better understand early detection, diagnosis and early intervention in children with ASD.

A third survey, led by Diana Schendel (Aarhus University, Denmark), addressed to adults with ASD, their family members and professionals in contact with adult patients, has as main objective to guide policies and improvements in the quality of life of adults with autism in Europe.

For access to the active surveys, as well as more information about ASDEU, you can visit the website of the proyect: http://asdeu.eu/es/

 

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